III.2.14 Patient, No Research Contact Flag

This flag is to be set to code 1, 2, or 3 if there is documentation on the medical record or if the cancer registry has been contacted by the patient or the patient’s physician saying that they do not want to be included in research studies. Cases coded to 4 or 5 should not be contacted for research studies.  Codes 4 and 5 are generated by the CCR.   

If there is no information with regard to the patient’s not wanting inclusion in one or more research studies, this flag should remain set to 0.

• Code 0 - There is no information with regard to the patient’s not wanting inclusion in one or more research studies.
• Code 1 - Hospital First Notified - would be entered.
• Codes 2 and 3 are for regional and central registry use.
• Code 4 - Out of State Case, Not for Research - is generated by the CCR.
• Code 5 - VA cases, Not for Research - is generated by the CCR.

The purpose of this code is to notify CCR and its regional registries that a case has been shared from another state and that this case cannot be given to researchers without approval of that state registry. It is not to be set for patients not wanting to be contacted during routine annual follow-up. Please use the Follow-up Switch for this purpose. This is a required data item and cannot be blank.

The codes are:

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