California Cancer Registry Reportability Guide

REPORTABLE TERMS

Ambiguous Terminology

Considered as Diagnostic of Cancer

Exception: If the cytology is reported as “suspicious” and neither a positive biopsy nor a physician’s clinical impression supports the cytology findings, do not consider as diagnosis of cancer.

The Reportable terms noted above are used ONLY for reportability. These are not to be used for determining tumor extension/involvement or for determining histological classification. There are separate lists for those

SITE SPECIFIC REPORTABILITY GUIDE

Site

Histology

Reference

Reportable/Non-reportable Criteria

SKIN

C44.0-C44.9

8000-8110

Volume One:  II.1.4 Skin Carcinomas:  II.1.4.1 Skin

Carcinoma Exceptions: II.1.4.2 Reportable Skin Tumors

Always been non-reportable

• Basal cell carcinomas of the skin

• Epithelial carcinomas of the skin

• Papillary carcinomas of the skin

• Squamous cell carcinomas of the skin

• Early Melanoma  

• Evolving Melanoma  

EXCEPTIONS: Reportable skin cancers include:

• Skin cancers in the genital sites (any histology): (vagina (C52.9); clitoris (C51.2); labium (C51.0); vulva (C51.9); prepuce (C60.0); penis (C60.9) and scrotum (C63.2) are reportable.

• All other malignant tumors of the skin, such as adnexal carcinomas (e.g., carcinomas of the sweat gland, sebaceous gland, ceruminous gland, and hair follicle), adenocarcinomas, lymphomas, melanomas, sarcomas, and Merkel cell tumors are reportable regardless of site. Any carcinoma arising in a hemorrhoid is reportable since hemorrhoids arise in mucosa, not in the skin.

• “Early melanoma insitu” and “Evolving melanoma insitu”  NOTE: These terms must be stated exactly as stated here. The term “insitu” must be included in diagnosis in order for these to be reportable.  No variation in terms allowed.

CERVIX

C53.0-C53.9

Any morphology

with behavior 2

Volume One: II.1.5 Cervix

Reportable = Before 1996

• Carcinoma in situ of the cervix (CIS) (including squamous cell & adenocarcinoma)

• Cervical Intraepithelial Neoplasia grade III (CIN III)

• Cervical Intraepithelial Neoplasia with severe dysplasia (CIN III)

BENIGN BRAIN

C70.0-70.9

C71.0-71.9

C72.0-C72.9

C75.1-C75.3

Behavior = 0 or 1

Volume One: II.1.9.1

Reportability

Reportable = 2001+

• Standard Difference: CCR reportability date for benign brains is 2001; national date is 2004.

• Juvenile astrocytoma is coded as borderline in ICD-O-3; North America registries report as 9421/3. (per ICD-O-3 Errata dated 5/22/2001)

BENIGN SCHWANNOMAS

C72.2-72.5

9560

Behavior=0

SEER and CDC

Reportable = 2004+ (only report Site codesC72.2-72.5)

C72.0

9560

Behavior=0

SEER SINQ #20130023

Per SEER Instruction, we are to report Benign Schwannomas (9560/0) of the spinal cord (C72.0) and of the cranial nerves (C72.2 - C72.5); therefore, these are both reportable to the CCR.  Benign Schwannomas occurring anywhere else such as the peripheral nerves or peripheral nerve roots are not reportable to the CCR.        

BORDERLINE OVARIAN

C56.9

8442/1

8451/1

8462/1

8472/1

8473/1

Volume One: II.1.10 Borderline Ovarian Tumors

Always been reportable either as a behavior /3 for pre-2001 or behavior /1 for 2001+

INTRAEPITHELIAL NEOPLASIA

PanIN-III (pancreatic intraepithelial neoplasia III)

C25.    

8500/2

Volume One: V.5.8.1 Terms Indicating In Situ

Reportable = 2004+

PIN III (prostatic Intraepithelial Neoplasia)

C61.9

8148/2

Volume One: V.3.4.2 In Situ

Has never been reportable to the CCR

VAIN III (vaginal intraepithelial neoplasia)

VIN III  (vulvar intraepithelial neoplasia)

C52._

C51._

8077/2

Volume One: V.3.4.2 In Situ

Coding

DSQC Memo #2002-01

PAQC Memo #2012-03

Reportable = 1992+

AIN III (anal intraepithelial neoplasia)

C21.0

C21.1

8077/2

Volume One: V.3.4.2 In Situ

Coding

DSQC Memo #2001-03

DSQC Memo #2002-01

PAQC Memo #2012-03

Reportable = 2001+

DIN 3 (ductal intraepithelial neoplasia 3)

C50.__

8500/2

Volume One: V.3.4.2 In Situ

Coding

DSQC Memo #2002-01

Reportable = 2001+

LIN III (laryngeal intraepithelial neoplasia)

C32.    

8077/2

Volume One: V.3.4.2 In Situ

Coding

DSQC Memo #2002-01

Reportable = 2001+

SIN III (squamous intraepithelial neoplasia)

All sites (Excluding Cervix)

8077/2

Volume One: V.3.4.2 In Situ

Coding

SEER Program Manual 2014

Reportable = 2014+

LYMPHATIC & HEMATOPOIETIC DISEASES---SUBSEQUENT DIAGNOSES

DATE DIAGNOSIS YEAR

1st Primary

2nd primary

Reference

Prior to 2001

Prior to 2001

ICD-O-2 table in Volume I, II.1.3.6 (ICD-O-2 rules)

2001--2009

2001--2009

ICD-O-3 table in Volume I, Appendix R (2001 Single Versus Subsequent

Primaries of Lymphatic and Hematopoietic Diseases table)

Prior to 2001

2001-2009

ICD-O-3 table in Volume I, Appendix R (2001 Single Versus Subsequent

Primaries of Lymphatic and Hematopoietic Diseases table)

2010

2010

SEER Hematopoietic Manual & Database

Prior to 2010

2010

SEER Hematopoietic Manual & Database

Clarification on Reportability

Appendix carcinoids

Only reportable if stated to be malignant in path report or when there are discontinuous malignant mets or mets to regional lymph nodes.

Dysplasia (severe, high grade)

Only reportable when it is specified as carcinoma in situ or pathologist documents as being synonymous with carcinoma in situ.

GIST – Gastrointestinal stromal tumors

Only reportable if identified as being in situ or malignant.

SEER Hematopoietic Manual & Database

SEER SINQ #20130042  

Always been non-reportable  

PUNLMP – Papillary Urothelial Neoplasm of Low Malignant Potential

Not reportable. Pre malignant growths in the upper urinary tract (renal , pelvis, ureters, urinary bladder part of urethra).

Urine Cytology - Positive for malignancy

SEER Program Manual- Reportability  

SEER INQ #20120079   

Volume  One: II.1.6.1 Reportable Terms Reportable 2013 +