Appendix U: Data Items and their Required Status

Appendix U is intended to be used by registrars to understand the data collection requirement status for each data item.

Reporting requirements are not uniform for all cancer reporting facilities.  Consult the following table to determine which data items must be reported:

Key to Symbols

no

Not required. It is optional for the facility to submit this data item value to the central registry.

yes

Required. The facility must submit this data item value to the central registry.

yes*

Required if available. If the information can be obtained, the facility must submit it to the central registry. If not available or not applicable, may be left blank.

conditional

Required on selected cases dependent on one or more conditions being true, such as the case’s diagnosis date being before or after a certain date.

gen

Required, but the facility’s registry software must generate the data item value based on a standard algorithm, rather than a user manually entering the data item value.

 

Items that are facility-generated are described in more detail, including allowable values in Cancer Reporting in California, Data Standards for Regional Registries and California Cancer Registry (California Cancer Reporting System Standards, Volume III). California Cancer Reporting System Standards: Volume III can be accessed here.

Table of Data Items and Their Required Status

Item Name

RX Ctr

Hosp> CCR

Abstractor

yes

yes

Accession Number (Hosp)

yes

yes

ACoS Approved Flag

yes

yes

Address at Diagnosis City

yes

yes

Address at Diagnosis No. & Street

yes

yes

Address at Diagnosis No. & Street - Supplemental

yes*

yes*

Address at Diagnosis - State

yes

yes

Address at Diagnosis - Zip Code

yes

yes

Address at Diagnosis - Country

yes

yes

Age at Diagnosis

gen

gen

Alias First Name

yes*

yes*

Alias Last Name

yes*

yes*

Ambiguous Terminology DX

no

no

Birthplace - Country

yes

yes

Birthplace - State

yes

yes

Casefinding Source

yes

yes

Cause of Death

no

no

Chemotherapy at This Hospital

yes

yes

Chemotherapy Summary

yes

yes

Class of Case

yes

yes

Coding Procedure

gen

yes

Comorbidity Complications 1

yes

yes

Comorbidity Complications 2 - 10

yes*

yes*

Contact City

yes*

yes*

Contact Country

yes*

yes*

Contact Name

yes*

yes*

Contact State

yes*

yes*

Contact Address No & Street

yes*

yes*

Contact Street - Supplemental

yes*

yes*

Contact Zip

yes*

yes*

County of Residence at Diagnosis

yes

yes

CS Tumor Size

yes

yes

CS Extension

yes

yes

CS Tumor Size/Extension Evaluation

yes

yes

CS Lymph Nodes

yes

yes

CS Lymph Nodes Evaluation

yes

yes

CS Metastasis at Diagnosis

yes

yes

CS Metastasis at Diagnosis Bone

yes

yes

CS Metastasis at Diagnosis Brain

yes

yes

CS Metastasis at Diagnosis Liver

yes

yes

CS Metastasis at Diagnosis Lung

yes

yes

CS Metastasis Evaluation

yes

yes

CS Site Specific Factor 1 - 25

yes

yes

CS Version Input Current

yes

yes

CS Version Latest

yes

yes

Date of Birth

yes

yes

Date of Birth Flag

yes

yes

Date Case Initiated

gen

gen

Date of Conclusive DX

no

no

Date of Conclusive DX Flag

no

no

Date of Chemotherapy

conditional

yes*

Date of Chemotherapy  Flag

yes

yes*

Date of Diagnosis

yes

yes

Date of Diagnosis Flag

yes

yes

Date of First Admission

yes

yes

Date of First Contact Flag

yes

yes

Date of Inpatient Admission

no

yes*

Date of Inpatient Admission Flag

yes

yes

Date of Inpatient Discharge

no

yes*

Date of Inpatient Discharge Flag

yes

yes

Date of Hormone Therapy

conditional

yes*

Date of Hormone Therapy Flag

yes

yes*

Date of Immunotherapy

conditional

yes*

Date of Immunotherapy Flag

yes

yes

Date of Last Patient Contact or Death

yes

yes

Date of Last Patient Contact or Death Flag

yes

yes

Date of Last Tumor Status

yes

yes

Date of Last Contact Flag

yes

yes

Date of Most Definitive Surgery of the Primary Site

gen

yes*

Date of Most Definitive Surgery of the Primary Site Flag

yes

yes

Date of Multiple Tumors

no

no

Date of Multiple Tumors Flag

no

no

Date of Other Therapy

conditional

yes*

Date of Other Therapy Flag

yes

yes*

Date of Radiation

conditional

yes*

Date of Radiation Flag

yes

yes*

Date of Systemic Therapy

gen

yes*

Date of Systemic Therapy Flag

yes

yes*

Date of Surgery

gen

yes*

Date of Surgery Flag

yes

yes*

Date of Surgery Diagnostic or Staging Procedures

conditional

yes*

Date of Surgery Diagnostic or Staging Procedures Flag

yes

yes

Date of Surgery Procedures 1-3

conditional

yes

Date of Surgery Procedures 1-3 Flag

yes

yes

Date of Therapy

no

no

Date of Transplant/Endocrine Procedures

conditional

yes

Date of Transplant/Endocrine Procedures Flag

yes

yes

Death File Number

no

no

Derived AJCC-7 T

yes

yes

Derived AJCC-7 T Descriptor

yes*

yes*

Derived AJCC-7 N

yes

yes

Derived AJCC-7 N Descriptor

yes*

yes*

Derived AJCC-7 M

yes

yes

Derived AJCC-7 M Descriptor

yes*

yes*

Derived AJCC-7 Stage Group

yes

yes

Derived SS2000

yes

yes

Derived SS1977

yes

yes

Derived AJCC - Flag

yes

yes

Derived SS2000 - Flag

yes

yes

Derived SS1977 - Flag

yes

yes

Diagnostic Confirmation

yes

yes

Discovered by Screening

yes*

yes*

EOD Extension

yes

yes

EOD Extension (Path)

yes

yes

EOD - Lymph Node Involvement

yes

yes

First Name

yes

yes

Follow up Contact Address Other

yes*

yes

Follow up Contact Address Other - Supplemental

yes*

yes*

Follow up Contact City Other

yes*

yes

Follow up Contact Country

yes

yes

Follow up Contact Name Other

yes*

yes

Follow up Contact State Other

yes*

yes

Follow up Contact Zip Other

yes*

yes

Follow up Last Type (Patient)

yes

yes

Follow up Last Type (Tumor)

yes

yes

Follow up Next Type

yes*

yes*

Follow up Hospital (Next)

no

no

Follow up Hospital (Last)

yes

yes

Grade Path Value

no

no

Grade Path System

no

no

Height

yes*

yes*

Histology Text

yes

yes

Histology Behavior (ICD-O-2)

yes

yes

Histology Behavior (ICD-O-3)

yes

yes

Histology Grade/ Differentiation (pre 2014)

yes

yes

Histology Grade/ Differentiation (post 2014)

yes

yes

Histology Type (ICD-O-2)

yes

yes

Histology Type (ICD-O-3)

yes

yes

Hormone Therapy at This Hospital

yes

yes

Hormone Therapy Summary

yes

yes

Hospital Number (Reporting)

yes

yes

Hospital Patient Number

gen

yes

Hospital Referred From

yes

yes

Hospital Referred To

yes

yes

ICD Revision Comorbidities

yes*

yes*

ICD-O-3 Conversion Flag

gen

yes

Immunotherapy at This Hospital

yes

yes

Immunotherapy Summary

yes

yes

Industry Text

yes*

yes

Last Name

yes

yes

Laterality

yes

yes

Lymph-Vascular Invasion

conditional

conditional

Maiden Name

yes*

yes*

Marital Status

yes

yes

Medical Record Number

yes*

yes*

Middle Name

yes*

yes*

Mothers First Name

yes*

yes*

Multiple Tumors Reported as One Primary

no

no

Multiplicity Counter

no

no

Name Suffix

yes*

yes*

Number of Regional Lymph Nodes Examined Surgery Summary

gen

conditional

Number of Regional Lymph Nodes Examined Procedures 1-3

yes

no

NPI Reporting Facility

yes*

yes*

NPI Hospital Referred From

yes*

yes*

NPI Hospital Referred To

yes*

yes*

NPI Following Registry

yes*

yes*

NPI Physician-Managing

yes*

yes*

NPI Physician-Primary Surgeon

yes*

yes*

NPI Physician-Follow-up

yes*

yes*

NPI Physician 3

yes*

yes*

NPI Physician 4

yes*

yes*

NPI Physician Other 1

yes*

yes*

NPI Physician Other 2

yes*

yes*

NPI Archive FIN

no

no

Occupation Text

yes

yes

Other Therapy at This Hospital

yes

yes

Other Therapy Summary

yes

yes

Over-ride Flags

yes

yes

Path Date Specimen Collected 1-5

yes*

yes*

Path Report Numbers 1-5

yes*

yes*

Path Report Type 1-5

yes*

yes*

Path Reporting Facility ID 1-5

yes*

yes*

Patient No Research Contact Flag

yes

yes

Payment Source (Primary)

yes

yes

Payment Source (Secondary)

yes*

yes*

Payment Source Text

yes

yes

Pediatric Stage

yes*

yes*

Pediatric Stage Coder

yes*

yes*

Pediatric Stage System

yes*

yes*

Phone Number (Patient)

yes*

yes*

Physician (Managing)

yes

yes

Physician (Following)

yes*

yes*

Physician (Medical Oncologist)

yes*

yes*

Physician (Other)

yes*

yes*

Physician (Other)

yes*

yes*

Physician (Radiation Oncologist)

yes*

yes*

Physician (Referring)

yes*

yes*

Physician (Surgeon)

yes*

yes*

Place of Death

no

no

Place of Death - Country

yes

yes

Place of Death - State

yes

yes

Place of Diagnosis

yes*

yes*

Protocol Participation

yes*

yes*

Quality of Survival

no

no

Race 1 - 5

yes

yes

Radiation at This Hospital

no

no

Radiation - Boost RX Modality

yes

yes

Radiation - Location of Treatment

yes

yes

Radiation - Regional RX Modality

yes

yes

Radiation Summary

yes

yes

Radiation/Surgery Sequence

yes

yes

Reason for No Radiation

yes

yes

Reason for No Surgery

yes

yes

Recurrence Date

no

no

Recurrence Sites

no

no

Recurrence Type

no

no

Regional Data

no

yes*

EOD- Regional Nodes Examined

yes

yes

EOD- Regional Nodes Positive

yes

yes

Religion

yes

yes

Scope of Regional Lymph Node Surgery 98-02 Summary

gen

conditional

Scope of Regional Lymph Node Surgery Summary

gen

yes

Scope of Regional Lymph Node Surgery Procedures 1-3

yes

yes

Secondary Diagnosis 1

yes

yes

Secondary Diagnosis 2 - 10

yes*

yes*

Sequence Number

yes

yes

Sex

yes

yes

Site Text

yes

yes

Site, Primary

yes

yes

Social Security Number

yes*

yes*

Social Security Number Suffix

yes*

yes*

Source Comorbidity

yes*

yes

Spanish/Hispanic Origin

yes

yes

Stage-Alternate

yes*

yes*

Staging Text

yes

yes

Summary Stage 1977

conditional

conditional

Summary Stage 2000

yes

yes

Surgery at This Hospital Diagnostic or Staging Procedure

yes

yes

Surgery at This Hospital Reconstructive

no

no

Surgery at This Hospital

gen

no

Surgery of Primary Site 9802 Summary

gen

conditional

Surgery of Primary Site Summary

gen

yes

Surgery of Primary Site Procedures 1-3

yes

yes

Surgery of Other Site Summary 98-02

gen

conditional

Surgery of Other Regional Site(s), Distant Site(s), or Distant Lymph Node(s)Summary

gen

yes

Surgery of Other Regional Site(s), Distant Site(s), or Distant Lymph Node(s) Procedures  1-3

yes

yes

Surgery Summary Diagnostic or Staging Procedure

yes

yes

Surgery Summary Reconstructive

yes*

yes

Surgical Margins Procedures 1-3

no

no

Surgical Margins Summary

gen

no

Systemic/Surgery Sequence

yes

yes

Text RX Chemotherapy

yes*

yes*

Text RX Hormone Therapy

yes*

yes*

Text RX Immunotherapy

yes*

yes*

Text RX Other Therapy

yes*

yes*

Text RX Radiation (Beam)

yes*

yes*

Text RX Radiation (Other)

yes*

yes*

Text RX Radiation Boost RX Modality

yes*

yes*

Text RX Radiation Regional RX Modality

yes*

yes*

Text RX Surgery

yes*

yes*

Text DxProc Lab Tests

yes*

yes*

Text DxProc Operative

yes*

yes*

Text DxProc Pathological

yes*

yes*

Text DxProc PE

yes*

yes*

Text DxProc Scopes

yes*

yes*

Text DxProc Xray

yes*

yes*

Text Remarks and Final DX

yes*

yes*

TNM Coder (Clinical)

yes*

yes*

TNM Coder (Path)

yes*

yes*

TNM Edition

yes*

yes*

TNM Stage (Clinical)

yes*

yes*

TNM Stage (Path)

yes*

yes*

TNM M Code (Clinical)

yes*

yes*

TNM M Code (Path)

yes*

yes*

TNM N Code (Clinical)

yes*

yes*

TNM N Code (Path)

yes*

yes*

TNM T Code (Clinical)

yes*

yes*

TNM T Code (Path)

yes*

yes*

Tobacco Use Cigarette

yes*

yes*

Tobacco Use Other Smoke

yes*

yes*

Tobacco Use Smokeless

yes*

yes*

Tobacco Use, NOS

yes*

yes*

Transplant/Endocrine Procedures At This Hospital

yes

yes

Transplant/Endocrine Procedures Summary

yes

yes

Treatment Hospital Number-Procedure 1-3

yes

yes

Treatment Status

yes

yes

Tumor Markers 1-3

conditional

conditional

Tumor Marker-CA-1

conditional

conditional

Tumor Size

yes

yes

Tumor Status

yes

yes

Type of Admission

yes

yes

Type of Reporting Source

yes

yes

Vendor Version

yes

gen

Vital Status

yes

yes

Weight

yes*

yes*

Year First Seen

no

yes

 

 

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